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PKU Symptom Checker

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For people with PKU, the symptoms of high or unstable blood Phe levels can occur slowly over time and can be difficult to recognize. Use the tool below to see if you or a loved one has been experiencing symptoms of PKU.

Select your role in the drop down below, respond to the questions, and click SUBMIT to view your results.

It is difficult for me to focus

Not
difficult
Sometimes
difficult
Very
difficult

I have recently found it difficult to maintain a PKU-friendly Phe-restricted diet

Never
Difficult
Sometimes
Difficult
Always
Difficult

I can be forgetful, and I often misplace things or need repeated reminders

Never
forgetful
Sometimes
forgetful
Very
forgetful

I feel uncomfortable in groups or get anxious when leaving the house

Never
Sometimes
Always

I don't understand what is causing my mood changes, and can feel sad or angry without knowing why

Never
Sometimes
Always

I often feel “foggy” or unable to pay attention

Never
foggy
Sometimes
foggy
Always
foggy

I often have trouble organizing daily tasks and figuring out a plan of action

Never
Sometimes
Always

It can take me a long time to respond to a question and I find it difficult to think quickly

Never
Sometimes
Always
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Find a PKU Clinic
Near You

Get PKU symptoms under control with a visit
with your PKU care team.

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Download the Doctor
Discussion Guide

Start a conversation with your care team about the symptoms that you are experiencing.

Join the PKU & ME program for support and guidance on living a healthy life with PKU.