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Find a clinic

If you don't have a metabolic clinic that can help you test and manage your Phe levels, find one near you now using the Clinic Locator.

Regular checkups power your progress

The only way to know your Phe level is to get regular checks. You can't guess your own Phe level accurately. Only your actual Phe level gives you the information you need to make good decisions.1

Set goals and reward yourself when you meet them

Adults should celebrate when they hit their goal phe level

When your Phe level is at goal at your checkup, that's an achievement! Make a point to do something nice for yourself each time you make your goal. You might buy a book, or take a class for fun. Be sure to share the good news with family and friends on the PKUniverse. Then, you may want to work with your doctor or dietitian to set an even lower goal for next time.

Remember, when it comes to Phe, lower is better.*2 Work with your doctor and dietitian over time to find out what Phe level is right for you.

Other clues to high Phe

The only way to know for sure if your Phe level is high is with a blood test. But your brain will also give you clues. Chances are your Phe is creeping up if:1,3,4,5

Having high Phe levels can make you feel different

  • You feel "foggy" or can't think clearly
  • Your reaction time is slow
  • You feel very moody, sad, hurt, or angry a lot
  • You can't stay focused

When you feel this way, ask your doctor or dietitian if getting your Phe level down could help.

* Lower is better until you get Phe into the normal range of 1-2 mg/dL. Going lower than 1-2 mg/dL can be unhealthy. Talk with your doctor about the right target range for you.1,2

Next: Getting back on track