Hello!

This is my first time blogging and I'm looking for advice. I have a beautiful 3 year old sone with classic PKU.  He's been doing great, with a tolerance of 320 phe a day.  My clinic has asked if I want to start looking into Kuvan for him.  I'm unsure about it. I'd love to hear about other parents' experiences with Kuvan and their little ones.  Doesn't matter if it is good or bad, I would love to have the input.

Thanks!