PKU.com is a place where members can share their personal experiences with PKU such as thoughts, feelings and stories.
Anyone can read the blogs. To post your own blog you must be a registered member of PKU.com.
Blogs
(229 blogs)
By pkukristi | 1 day(s) ago |
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Just wondering, does anyone ever use the chat room here on the PKU.com website? I have gone in a few times, just figuring I'd take a shot in the dark as to whether or not anyone happened to be in there. I think it would be a gre...
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By pattis1313 | 6 day(s) ago |
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I have been off diet for 20 years. I'm trying to get back on, but it's a long slow process, as I've been out of work for 6 years and can't afford to buy the diet foods. I have been researching them, however and I have a question. I measured the f...
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By StefanieandElla | 7 day(s) ago |
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Hey guys, My name is Stefanie and I have was blessed with a great little girl named Ella almost a year ago. Not to long after she was born I found out she has PKU. Well her birthday is coming up on March 27 and I need ideas on where ...
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By pkukristi | 8 day(s) ago |
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With some good chunks of time off of work (yay, for the life of a nurse--working three days a week!), I have been able to spend some time in the kitchen. Some recipes are new, some are oldies but goodies. bread made from Taste...
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By pattis1313 | 13 day(s) ago |
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At the risk of sounding stupid: If something has no protein, does it mean it has no phe? (according to info on nutrition label)
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By rockg | 13 day(s) ago |
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This is on behalf of my brother who has PKU. I am familiar with where his levels needed to be as a child but he is now an adult. For those of you living with adult PKU, What levels are you comfortable with that are symptom free?...
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By sarahl | 14 day(s) ago |
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For those of you who haven't seen this information before, I've posted a link for more info on the national bill to cover medical bills. http://www.pkuil.org/
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By dance_N_da_RAIN_13 | 2 week(s) ago |
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so i work in a cafe and yesterday at work my chef was fighting with me about how there is NO protein in veggies i said yes there is he said how much do you want to bet i said i bet my life on it i could not believe this guy my whole life ...
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By jenn_harney | 2 week(s) ago |
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Just wanted to vent and see if anyone else suffers from this problem.... And please let me know if you have any solutions Ok, so I know we pry aren't supposed to eat normal pizza, but once in a while, I do. I order a pizza with mushrooms, jalape...
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By dmw19 | 2 week(s) ago |
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Doesn't anyone have any advice for treating acid reflux??? My poor little baby has been diagnosed with this. They have put him on Prevacid and he is doing much better. He was spitting up (more like throwing up) about 5-6 times a...
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