PKU.com is a place where members can share their personal experiences with PKU such as thoughts, feelings and stories.
Anyone can read the blogs. To post your own blog you must be a registered member of PKU.com.
Blogs
(17 blogs)
By bannie | 1 year(s) ago |
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Well, after getting off to a shaky start last weekend (thanks a lot chips!) I've had a pretty successful week of sticking to 8g a day. Last weekend I kinda messed up because we had friends over and we had wine and cheese and biscuits and chips. N...
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By bannie | 1 year(s) ago |
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Hi everyone. My name is Anna, I'm 27 and I live in Perth, Western Australia. I've recently joined PKU.com and have enjoyed reading the forums and posts from people. It's great to have a support network online when you've got PKU. Mine is classi...
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By katiemag16 | 1 year(s) ago |
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Hi everyone... I wanted to share with you a website that was recently launched... It is www.Cookforlove.org . It is a culinary website that was created by Brenda Winiarski to provide food for people with PKU (or their famil...
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By pooh40 | 1 year(s) ago |
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Im a grandmother to a 1 year old boy named Brydan Dayne Brewer. He has classic PKU. Their is no funding in the state of AL. to help with treatment or food for people with PKU. I want to change that not only for my grandso...
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By LilBigz23 | 1 year(s) ago |
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I have PKU. I have had a rough childhood. I never met anyone else with PKU besides my older brother but he was born during the time that they didnt know much about PKU so he never followed a diet. Everyone teased me at school. But the older I got...
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By lowerlevels | 1 year(s) ago |
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hey all i just wanted you all to know that i have re started helping w/ a research study w/ kuvan and i feel better than a rollign stone you know what they say about those things huh ? they gather no moss lol i met a good friend from tenneesee w...
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By katiemag16 | 1 year(s) ago |
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Hi Everyone, I just got back from a trip to Disney World in Florida. I wanted to share some information with you about traveling to Disney with PKU or with a family member who has PKU…. Every restaurant I traveled to was extremely acc...
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By Kerri28 | 1 year(s) ago |
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I have twin girls that are 21/2 months and have hyper-PKU. There level have aleays been low (7.6 and 8.5) with the special formula mixed w/ regular formula the levels went down to 2.2. This is so hard for me to understand se...
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By supersonic | 1 year(s) ago |
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for all those moms or dads of pku children i just recently attended the most awesomeist PKU camp in the world the location is in the U.S.A in texas in a small town called Burton in you live in the state well i suggest driving into housten and go...
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By james007 | 1 year(s) ago |
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is there anywere that can help your wife to understand pku if so can some pass it on we live in ausrtraila thanks guys from james
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