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PKU.com is a place where members can share their personal experiences with PKU such as thoughts, feelings and stories.
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November 2009 (41 blogs)

Slipping a little...

By sarahl | 10 month(s) ago | Permalink

Thanks to all who made suggestions about the Thanksgiving meal...I managed to mostly stay on my diet on the holiday. Here's the thing though...I've been doing great on my diet for the past 7 weeks or so. I really feel great overall & no...

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PKU Blog

By BreaMarie91 | 10 month(s) ago | Permalink

Hi everyone! Last spring I created a website/blog as an assignment for my Survey of Technology class. After the class ended I had every intention of taking the website/blog down, but I never got around to it. The website/blog started off as a two...

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alcohal and pku

By timaaahhh | 10 month(s) ago | Permalink

Im from Ireland so i do quite a bit of drinkin but i dont even know if im able to drink alcohal...can I? My dietican was going to have a talk with me about but then i changed to a different one. I know I could just ask my new but id rather ...

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Pregnant with PKU

By umnurse24 | 10 month(s) ago | Permalink

So, I have have been on bed for 2 weeks now and am just about 28 weeks... the first week being in the hospital to stop my preterm labor and now I am at home continuing bed rest to keep the my twins growing safely in my belly. At the h...

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Im Sorry...

By DJCJ | 10 month(s) ago | Permalink

First off i want to appologize for if i curse or get really really rude in this becuase i might... to al the PKUers out there... I am taking the PKU Chart down off the net.. Because Virginia Schuett's Seems to care less about People with P...

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NPKUA High Hopes

By hlr26 | 10 month(s) ago | Permalink

Hi! Is anyone else going to the National PKU Alliance High Hopes Conference in Dallas, TX in January, 2010? I'll be there, I would love to meet some of you!

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Oops.. I did it again... CO...

By hlr26 | 10 month(s) ago | Permalink

So in my last blog I gave you the wrong link to my outside-of-PKU.com Blog... it is www.pkuandhealthytoo.wordpress.com (not org!) Feel free to stop bye! Check out a great veggie nugget recipe, and my about PKU pages! And let m...

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A possible mother with PKU

By Talenswolf | 10 month(s) ago | Permalink

Hi, I am new to all this. I am a 25 year old mother of two wonderful little girls, Dy-ana 5 and Arie-ana 2 1/2. My girls have struggled since birth with weight gain development delays across the board and poor muscle tone. My 5 year old Dy-ana st...

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