PKU.com is a place where members can share their personal experiences with PKU such as thoughts, feelings and stories.
Anyone can read the blogs. To post your own blog you must be a registered member of PKU.com.
June 2010
(26 blogs)
By pkugurl99 | 3 month(s) ago |
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With the right friends PKU is fun and funny! My friends have aways been very sapourtive with my PKU always makin sure I have something to eat and im happy with what im eating. But sometimes they can go alittle over bord... I've had friends t...
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By MACPAD | 3 month(s) ago |
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Pennsylvania Baseball Tournament Hoping to Raise Funds for a Good Cause! Come be part of a great cause! The Harleysville Community is helping to raise awareness for PKU in August 2010. The baseball tournament will be call...
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By JackofHearts | 3 month(s) ago |
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I found this reading particularly interesting, according to this article in the Netherlands Journal of Medicine, according to their review, most of the reasoning behind the "Diet for life" comes from the lack of evidence that those with PKU ...
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By MaverickHartley1 | 3 month(s) ago |
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Hi i was wondering how many moms acctually have a full time job while caring for their PKU child? i am needing advice on this because i am trying to figure out if i should be worried about working and not being the one with him all the time? We a...
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By calhoun | 3 month(s) ago |
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Grrr, I am trying to get on the Unified to Support Metabolic Disorders website (usmd-pku.org) and keep getting an American Fire Services website. Is this happening to anyone else?
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By JAHSGIRL642010 | 3 month(s) ago |
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HELLO, IAM A 46 YEAR OLD FEMALE.AND I LIVE IN NY IN THE USA. AND I HAVE A SHORT STORY TO SHARE. WELL I WAS BORN WITH PKU.AT THE TIME I WAS BEING SEEN AT BELLEVIEW HOSPITAIL IN NY CITY. I WAS STARTED ON THE DIET FROM BIRTH. AND ALL ...
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By calhoun | 3 month(s) ago |
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I am new to blogging and new to PKU. My name is Julie and I had my first child on February 9th in Anchorage, AK. He is a healthy and happy baby boy. When we first got the call that his metabolic screening result came back abnorm...
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By JackofHearts | 3 month(s) ago |
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Anyway I tend to be fairly inconsistent at blogging, and I tend to ramble with my thoughts a bit, but here goes. I have PKU, and I never really got into it. It seems to me that so many people online discussing it here make it...
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By pkukristi | 3 month(s) ago |
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So when I was younger, my parents and I only requested like once or twice for a pizza place to heat up my pre-made pizza and they said no, that if any food goes back into their kitchen they are liable, so they won't do it. I've been hearin...
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By Ange | 3 month(s) ago |
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PKU during Childhood: I have atypical PKU and relaxed the diet around the age of 11. My grades in school radically fell and I went from being in the top achieving streams in my subjects to needing classroom assistance in the lowest streams. I ...
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