7 members, led by TKEchris - updated 10 month(s) ago
This is an event that is currently in the makings... Anyone is invited to attend.... Planning is currently underway to raise awareness and money for future research. Please E-mail if you plan to attend. I would like to include some shirts. Time/Date: TBA Place:TBA, but in the Lansing, MI area...
9 members, led by TKEchris - updated 8 month(s) ago
WELCOME!!!! As I am sure you all know I strongly advocate exercise. This disease is not a curse in my eyes. We are unique not only in the lack of ability our bodies share, but in the resources we share. Who else do you know that has nearly 24 hour access to a dietician? I don't know anyon...
19 members, led by BeautyBlitz - updated 3 week(s) ago
A place for non-classic PKU-ers to connect, though everyone is welcome! =). If you have HyperPhe or are a parent of a HyperPhe child join here to connect with other people dealing with HyperPhe.
26 members, led by Venin666 - updated 1 year(s) ago
A gathering place for those of us with PKU to hang out, chat about the diet, trade recipes, offer food alternatives... and other general things involved with food
TO DISCUSS YOUR PERSONIAL STRUGGLE THROUGH OUT YOUR LIFE. YOUR TRIUMPHS AND YOUR FAILUARS. AND DISCUSS HOW THINGS HAVE CHANGED OVER TIME WE WILL MEET 1 TIME A MONTH.AT 3PM.ON SATURDAYS
6 members, led by pioneeradult1 - updated 1 year(s) ago
Lobbying politicians for improve care, healthcare card, more treatment and low protein food choices better education. Improve life for the person with PKU
The PKU Challenge is an all Out Search & Rescue Of PKU Adults... See the web site... www.PKUChallenge.org and be connected to other PKU Adults... Seek find and help those who need help with PKU And all aspects of the diet...
21 members, led by HealthEducator - updated 1 year(s) ago
This is a group targeted for adults living with PKU in the Midwest area. We would like to create a space for adults with PKU to network with one another and share their own thoughts and ideas related to adult life and PKU. As the group organizer, I am in charge of facilitating activities for th...
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