2 members, led by Venin666 - updated 1 month(s) ago
A gathering place for those of us with PKU to hang out, chat about the diet, trade recipes, offer food alternatives... and other general things involved with food
TO DISCUSS YOUR PERSONIAL STRUGGLE THROUGH OUT YOUR LIFE. YOUR TRIUMPHS AND YOUR FAILUARS. AND DISCUSS HOW THINGS HAVE CHANGED OVER TIME WE WILL MEET 1 TIME A MONTH.AT 3PM.ON SATURDAYS
1 members, led by pioneeradult1 - updated 1 month(s) ago
Lobbying politicians for improve care, healthcare card, more treatment and low protein food choices better education. Improve life for the person with PKU
for those who want to either keep better records of their diet.. Or get on the diet.. The PKU Challenge is set up like a Sports League... Where PKU adults challenge each other ... for better levels.. for amount of days they can stay on track.. and more detailed things.. Challenge by stats of t...
14 members, led by HealthEducator - updated 4 month(s) ago
This is a group targeted for adults living with PKU in the Midwest area. We would like to create a space for adults with PKU to network with one another and share their own thoughts and ideas related to adult life and PKU. As the group organizer, I am in charge of facilitating activities for th...
