You are browsing the archive for Living with PKU.

Avatar of Keira

by Keira

Holidays

December 27, 2016 in Diet, Exercise, Living with PKU, Parenting, PKU Events

Hi all. I don't know about anyone else, but holidays are extremely difficult. All that food that you can't eat. Trying to keep your portions acceptable. UGH, it drives me insane. Thanksgiving is the worst. All of my favorite foods. Mashed potatoes, g...Continue Reading

A year later???

December 26, 2016 in Living with PKU

2016 is almost over and it's Christmas!!! Merry Christmas! Update on life n such! I'm still at my daycare working as a teacher. They kinda put me all over in the age groups. But the past two months I have had issues with a co worker. Which is not no...Continue Reading

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Hello!

December 21, 2016 in Living with PKU

Hello! I am new to this, the blog, the posting and the website. I'm 25 years old and I have been living with PKU all my life. I remember being picked on in school because I had to take my formula to lunch. My step mother saying she understand and no...Continue Reading
Avatar of Lena

by Lena

Hello!

December 21, 2016 in Living with PKU

Hello! I am new to this, the blog, the posting and the website. I'm 25 years old and I have been living with PKU all my life. I remember being picked on in school because I had to take my formula to lunch. My step mother saying she understand and no...Continue Reading
Avatar of Keira

by Keira

Weekends

December 19, 2016 in Living with PKU

Weekends are always hard for me from a diet standpoint. Usually there are activities we are doing or people we are going to see, and keeping healthy snacks nearby is not always an option. I know that I can bring an apple or pear with me, but after a ...Continue Reading

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Friday Dec.16

December 16, 2016 in Living with PKU

I have never blogged before. I wanted to start a blog about one of the most influential aspects of my life. PKU. PKU is something I have struggled to keep control over for all of my life. When I am in control and on diet my life is a lot less stressf...Continue Reading
Avatar of Keira

by Keira

Friday Dec.16

December 16, 2016 in Living with PKU

I have never blogged before. I wanted to start a blog about one of the most influential aspects of my life. PKU. PKU is something I have struggled to keep control over for all of my life. When I am in control and on diet my life is a lot less stressf...Continue Reading
Avatar of Eric

by Eric

Welcome to My Blog!

August 15, 2016 in Diet, Living with PKU

In my first post, I would like to say that I feel that I am truly challenged every day by the diet to be the best that I can be every day. Not only do I have to eat right and exercise, but also I have to do my best to drink my 3 glasses of formula a...Continue Reading
Avatar of Shona

by Shona

My pku

May 5, 2016 in Living with PKU

Hi my name is shona I am 56 this month I was born in 1960 in belfast I was 2years old when I was discovered with pku and I was put on gluten free low protein diet the substance I was put on was minophen I was the first person to be born in belfast w...Continue Reading

2 years later.

January 6, 2016 in Living with PKU

Its been 2 years! yes this is Pkugirl88 but on a new one because well I forgot my stuff. Lots have happen since then. I work at a daycare just hit my 1 year mark. For a while I was on my diet almost perfect. Then when I moved into my own place man th...Continue Reading

PKU with Alopecia Areata

November 22, 2015 in Living with PKU

Hi everyone with PKU. I have been diagnosed with having Alopecia Areata and got adult Classical PKU. I was wondering does anyone know what could be causing this and whether anyone with PKU got it? I have lost eyelashes(2 lids), scalp hair, beard hair...Continue Reading
Avatar of Kate

by Kate

Alone with Pku

August 22, 2015 in Living with PKU

I live in a town were, if I say, I have pku. I get looked at like I have 4 heads. Huh What's pku is what I always hear. I tell them basic info on it. But it can be frusterating repeating myself so often. I feel like telling them to google it. But I w...Continue Reading
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