You are browsing the archive for Living with PKU.

Newbie

July 23, 2017 in Diet, Living with PKU

Hello my name is Alexandra! yall can call me Alex. Im new to this whole thing but im glad to be a part of this community. Reading the stories are very comforting and inspiring and lets me know Im not alone in the world. Im 23 years old and just gradu...Continue Reading
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by Mya

New B

May 12, 2017 in Living with PKU

Hello everyone, my name is Mya and I am new to this but I am going to tell you guys bits and piece about my life so far (that I feel comfortable with tell) please feel free to leave a comment and ask questions as I post things or message me privately...Continue Reading
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by Mark

Marks new diet adventures

March 7, 2017 in Diet, Exercise, Living with PKU

Hello again another meals I came across and love is zucchini pasta with different pasta sauces such as vegetable alfredo sauce, to Ago and basil. ...Continue Reading
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by Carling

Back again!

February 14, 2017 in Living with PKU

Hi everyone!! I am back again! I forgot about my account with this website. But I am back now. Update on me. I will be starting kuvan in a month. I hope it works for me!! I still have not had a baby. I have lost 2 babies. God just said it wasn't time...Continue Reading
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by Keira

Crazy Days

January 20, 2017 in Diet, Exercise, Living with PKU, Parenting, PKU Events

Does anyone else have those crazy days where you have a whole list of things that need to get done, and you feel so overwhelmed it almost seems better to crawl under the covers and hope it all goes away? Yeah, that's me this weekend. I see people on ...Continue Reading
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by Keira

Holidays

December 27, 2016 in Diet, Exercise, Living with PKU, Parenting, PKU Events

Hi all. I don't know about anyone else, but holidays are extremely difficult. All that food that you can't eat. Trying to keep your portions acceptable. UGH, it drives me insane. Thanksgiving is the worst. All of my favorite foods. Mashed potatoes, g...Continue Reading

A year later???

December 26, 2016 in Living with PKU

2016 is almost over and it's Christmas!!! Merry Christmas! Update on life n such! I'm still at my daycare working as a teacher. They kinda put me all over in the age groups. But the past two months I have had issues with a co worker. Which is not no...Continue Reading

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Hello!

December 21, 2016 in Living with PKU

Hello! I am new to this, the blog, the posting and the website. I'm 25 years old and I have been living with PKU all my life. I remember being picked on in school because I had to take my formula to lunch. My step mother saying she understand and no...Continue Reading
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by Lena

Hello!

December 21, 2016 in Living with PKU

Hello! I am new to this, the blog, the posting and the website. I'm 25 years old and I have been living with PKU all my life. I remember being picked on in school because I had to take my formula to lunch. My step mother saying she understand and no...Continue Reading
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by Keira

Weekends

December 19, 2016 in Living with PKU

Weekends are always hard for me from a diet standpoint. Usually there are activities we are doing or people we are going to see, and keeping healthy snacks nearby is not always an option. I know that I can bring an apple or pear with me, but after a ...Continue Reading

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Friday Dec.16

December 16, 2016 in Living with PKU

I have never blogged before. I wanted to start a blog about one of the most influential aspects of my life. PKU. PKU is something I have struggled to keep control over for all of my life. When I am in control and on diet my life is a lot less stressf...Continue Reading
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by Keira

Friday Dec.16

December 16, 2016 in Living with PKU

I have never blogged before. I wanted to start a blog about one of the most influential aspects of my life. PKU. PKU is something I have struggled to keep control over for all of my life. When I am in control and on diet my life is a lot less stressf...Continue Reading
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