Information about PKU for adults

adults together, as a group – to convey idea of social life

Live the life of your dreams while managing your Phenylalanine (Phe) levels

Without PKU management, high levels of Phe in the blood affect behaviour and performance at every stage of life. Making a long-term commitment to a treatment plan will enable you to reach your potential.

Read more about PKU in adults

A carrier will never have a PKU child with a non-carrier

Best practice guide for adults with PKU

Find out about the chances of passing on PKU, the role of ethnicity in genetics, and the groups that are vulnerable. The incidence of PKU varies considerably between countries.   

Read best practices to help you manage your everyday life and plan for pregnancy