Best practice guide for children with PKU
Everyone is different: understanding the importance of PKU treatment
To reach his/her full potential, your child must grasp the importance of his/her special health needs.
Some kids have to restrict their diet to avoid severe allergic reactions; others need to monitor blood sugar levels with extreme care because they are diabetic. Helping your young child understand the seriousness of a disorder that causes lasting damage to the brain is a challenge. But it’s important to your child’s long-term health that he/she realises that low blood Phenylalanine (Phe) levels are critical to his/her wellbeing. The treatment plan you set in place today will become a habit of a lifetime.
It’s also important to your child’s developing self-esteem to realise that individual differences need not be negative. They make us who we are, even though there are times when all we want is to mix into the crowd. Help your child understand that it’s by respecting his/her special health needs he/she can lead a fulfilled life and reach his/her potential.
Download your best practice guide Laying the foundations for a healthy, independent future.
