Newborn babies with PKU

Caring for your new baby.
In this section discover what a diagnosis of PKU means for your newborn baby and how to care for your baby’s dietary needs in the months ahead. Learn the meaning of terms associated with the disorder and the treatment options available as your child develops.

Teenagers and young people with PKU

Taking steps towards independent living with PKU.
In this section, find out how you can balance your lifestyle against the demands of managing blood Phenylalanine (Phe) levels and learn about new treatment options that may help. Take responsibility for your disorder and pick up tips on how to manage PKU and still enjoy time out with your friends.

Children with PKU

Growing up with PKU.
In this section, deepen your knowledge of PKU and the treatment options available to your growing child. Learn about the importance of dietary precision, how to take blood samples and take away practical tips on how to balance your family’s needs and instil independence in your child.

Adults with PKU

Getting the best out of life with PKU.
In this section, uncover the best treatment options available according to your stage in life and why it’s never too late to resume good management of blood Phenylalanine (Phe) levels. Discover the steps you need to take in order to plan a healthy pregnancy and maintain your wellbeing.