Welcome
On this website you can find information for parents of newborn babies, families with young children, teenagers and young people and adults with PKU. Click on the corresponding picture to learn more about a specific target group.
Newborn babiesDiscover what a diagnosis means for your newborn baby and how to care for your baby’s dietary needs in the months ahead.
Teenagers and young peopleTake responsibility for your disorder and pick up tips on how to manage PKU and still enjoy time out with your friends. Find out how to balance your lifestyle with the demands of managing blood Phe levels.
ChildrenDeepen your knowledge of phenylketonuria and the treatment options available for your growing child. Learn about the importance of dietary precision, how to take blood samples and practical tips on how to balance your family’s needs and instil independence in your child.
AdultsUncover the best treatment options available according to your stage in life, why it’s never too late to resume good management of blood Phenylalanine (Phe) levels and discover the steps you need to take in order to plan a healthy pregnancy and maintain your wellbeing.