Treatment information for adults with PKU

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Finding a lifestyle that lets you live: the challenge of controlling blood Phenylalanine (Phe) levels

To many people with PKU, diet management represents a challenge. The nature of the disorder means that there is no simple, universal treatment because blood Phenylalanine (Phe) targets vary according to individual tolerance.

In this section, learn more about medication that may help you achieve a more flexible PKU treatment program.

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Planning for pregnancy and a healthy baby

Understand why your blood Phenylalanine (Phe) levels need to be low and stable before becoming pregnant and the risks of an unplanned pregnancy. If you have PKU and are planning a family, you need to take action immediately to give your child a healthy start to life.

Learn what you need to do to give your baby the best chance of being born healthy and why you need to begin before conception.