Community Discussion Forum Adults and PKU new to group Reply To: new to group

Avatar of Nancy

I am 60 years old and I have sever pku we are first generation pku. We are ones that they reserched on. I have 4 normal adult children. I graduated from high school worked but when I have questions about pku I don,t no where to go because they this didn,t exist before my generation. So I don,t no where to go from here. I was diganosed with pku in first grade.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional