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Hi – My son is nine weeks old, and has PKU. I’ve not been able to find a lot of info on babies and PKU. I know what it is and how he got it, and I know it has to be a low phe diet, but I’d love to hear how some parents with babies are doing things. I’m nursing, not yet on the formula, but will probably start him very soon. Just waiting on the latest result – probably tomorrow. How do things go once the babies are started on solid foods? I did it with two kids without PKU, and I’m not sure how things will go with my new little one.
I appreciate all feedback. Thanks in advance!
talk to you soon!!

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