Community Discussion Forum That’s PKU life! Regarding clinics Reply To: Regarding clinics

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My kid’s clinic is about 3 hours from their home. It’s a very nice clinic with caring staff. But neither one of the kids wants to go there. They are adults so it’s up to them I guess. But they both have issues that I think are related to high PHE levels. I just think it would be better for them to be on the diet and they should do it anyway they can that they would feel comfortable with.

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