PKU.com Community Discussion Forum New to PKU.com Anybody home? Reply To: Anybody home?

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achristi
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Carrie,
If your formula is anything like mine it doesn’t taste the best but you get used to it. For that reason alone I would never go off it because it would be too hard to start drinking it again when you want to have kids. I’m no doctor but everything I’ve heard is to stay on formula and diet for general good health. I didn’t have my blood levels checked for years and when I finally did again they were fine but not good enough to have a baby yet. I never went off the formula or diet though. So my levels have always been about the same. It’s great to hear from you. nAnne

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