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#4358
Avatar of Bethany
sjimnbeth
Member

We’re still waiting for the latest result – hopefully today. I still have a lot to learn about all this stuff. I guess it’s possible he doesn’t have the PKU, but maybe just hyperphe? I think it will be a while before we know for sure, but I’m trying to learn as much as I can. When we went to the specialist for the first time, he was 4.3, then went to 4.8. He had been staying around that number, but I’ve seen that the more Similac formula he has, the higher his number is going. His last reading we have was 5.3, but again, waiting for today’s number. I have a can of the special formula to start him on it as soon as I need to. Just hate the waiting, and the blood draws. I do know that it’s not the classical PKU (I think) or his numbers would have been much higher at first. Just waiting to find out what to do next. Talk to you soon,

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