Community Discussion Forum Generation PKU soooo…who wants 2 talk? Reply To: soooo…who wants 2 talk?

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to the person who wanted to know if there was anyone who has been off their diet I can say yes I don’t have pku but my husband does and hasn’t been on his diet for 8 years now and he is doing fine well to the best of my knowledge I am trying to get him to see a specialist and get him back on his diet I just think he might still be a little embarassed by having pku and what people think we dine out a lot and they always try and offer him the special’s and I guess he doesn’t want to embarass himself so he just says yes to the main menu’s instead of asking for the vego dishes and plus I always need a calculator to add his units

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