Community Discussion Forum Generation PKU soooo…who wants 2 talk? Reply To: soooo…who wants 2 talk?

Avatar of connor

hi im writing to just say hi i have a child who has pku he has just turned 5 he is getting on brilliantly,i am his mum and i dont have pku but i have to sisters that have it,, they are now 22 and 23 they have been of there diet now for 2 years and are doing fine,i dont know what to say about weather it is best to come of the diet or stay on it for life?? i have been advised that it is best to stay on it by my sons specialist, thankyou for listnen as this is the 1st website i have come on to speak xx [/SIZE]

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