PKU.com Community Discussion Forum New to PKU.com Anybody home? Reply To: Anybody home?

#4408
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It is wonderful to read about other people…because sometimes you feel like your the only one going through it. I have a 5 month old son with hyperphe, he is doing very well so far. We live in Canada and i am not sure how your numbers compair to our numbers but my son’s levels 2 weeks ago were 182. I was breast feeding and giving him regular formula and his levels were wonderful. Then at 4 months i stopped breast feeding and his levels jumped a bit, but they were still very good. In the start they told me that he wouldn’t begin to eat till after 6 months, well at his last blood work they were so happy with his levels they told me to begin to give him single grians. I have one month to get all the grains into him and then blood work. Keep your fingers crossed, i will keep all of you posted.

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