Community Discussion Forum New to new member, PKU carrier. Reply To: new member, PKU carrier.

Avatar of Bethany

I have three kids, one with PKU. He’s four months old so I’ve been asking alot of questions about this lately. I was told that my kids that do not have PKU have a 50% chance of being carriers and 25% chance of having nothing. Our doctor told us that the chances of our kids getting with someone else who was a carrier was very small, and even if they did, their chances of havinfg a PKU baby were still only one in four, that wouldn’t change.
As far as the aspartame, if your body processes it fine now, which it does, it will continue to do so. It is a condition that you are born with from your genes.
Good luck with everything!

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional