Community Discussion Forum Generation PKU Question Reply To: Question

Avatar of Breanna

I know what you mean, it is hard. Actually only a few of my friends know about my PKU and that is mostly my really close friends from school. So I deal with alot of the offering of food from my friends who don’t know. For me it hasn’t really been hard to say no most of the time…I usually just say no thanks.
But yea sometime it’s hard….for awhile I actually used to sneak alot of foods I shouldn’t in like 6th grade so after awhile I just told my friends not to offer me anything it sounded lame but it worked cuz then I didn’t have the urge to eat it.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional