PKU.com Community Discussion Forum That’s PKU life! Regarding clinics Reply To: Regarding clinics

#4493
Avatar of Breanna
BreaMarie91
Member

Me and my sister (We’re 15 and 7) see my PKU doctor and dietian at Childrens hospital, and lucky for us distance isn’t an issue because it’s only about a 20 minute drive. We usually do out blood tests at home and then send them in. I also have that slight problem with making appointments when I should (well actually my dad does that), but they always send a note and then my dad makes one. But our real problem is bloodtest because we always forget to do them. We’ve tried almost anything, even if we write it on our calendar we always manage to forget with all the busy stuff going on. nBreanna

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional