PKU.com Community Discussion Forum New to PKU.com Is there a hope for PKU cure? Reply To: Is there a hope for PKU cure?

#4545
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juliaccheek
Member

[FONT=Arial][SIZE=12][COLOR=blue]I’m writing in response to BreaMarie91. I was so encouraged to read your positive message! My two week old son has just been diagnosed with PKU, and I am trying to learn as much as I can about it for him. It’s great that your mom has been such a wonderful support for you. I’d like to know if you have any advice for moms of other children with PKU. What are some of the things your mom did that helped you as you were growing up and dealing with PKU? Was it hard to have brothers/ sisters without PKU? Thanks, and good luck with your dancing! I am sure your mom is very proud of you.

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