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Hi Kami, Thanks for your reply. I hope your daughter in doing well. I remember when my daugther Sara was eight weeks old . It was a difficult time for us, because we didn’t know very much about the illness.
In Spain PKU is detected in the first few days, after birth, I think it is de same in all countries. When Sara was born she had weekly level checks untill she was one, and then, every two weeks untill the age of 2. After that untill now she has had monthly level checks. At the moment my daughter is starting to have a difficult time because she wants to eat everything and she asks why she can not eat what she wants. I think from now she needs more help and I hope everything going well. Kind regards from Spain.

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