Community Discussion Forum Generation PKU Hey I’m new Reply To: Hey I’m new

Avatar of Breanna

Yeah it’s just me and my little sister who have PKU, but my mom did think my brother (he’s 16 now) had PKU because he didn’t learn to crawl and walk and all that till later on, plus he had really light hair. So they had him tested, turns out he was just a carrier.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional