PKU.com Community Discussion Forum Parent support Phe levels Reply To: Phe levels

#4701
Avatar of Breanna
BreaMarie91
Member

Rocky21,
I have CPKU and I do remember when I was younger, maybe between like 2 and 6 or around there my levels and all that was changed alot. If your son is having exactly how many phes and formula he’s supposed to have then chances are maybe he is probably being allowed to many phes. nBreanna

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