Community Discussion Forum Parent support Brothers and Sisters without PKU Reply To: Brothers and Sisters without PKU

Avatar of Breanna

Also if your wondering on how to make your daughter understand what PKU is all about I wouldn’t worry to much. I talked to my older sister who is now 18 and she said she never really remember my mom ever explaining to much of PKU. My sister was basically learning about PKU at the same pace as my mom (and she was 3). My mom just did little things like let me sister help make my formula before I could make it myself, let her measure my food and if my sister asked why I ate different she wouldn’t give a huge explaination but a simple one that a little kid can understand. And suprisingly my sister to this day probably knows more about PKU then me! nBreanna

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional