Hello heatherfrazier, My name is Kenneth. I am seventeen years old and I am a prosperous young man. I was diagnosed with PKU at three weeks, and I’ve been better than ever. All that really is required for a PKU baby to be great when they get older is to stay on diet. I’ve been on diet for seventeen years, and have come along with a few bumps in the road, but we were able to get through them. If you would like online help with your child or any more advice, visit my profile to receive my email and I will be more than happy to give you any kind of advice. Good luck in the future!