Community Discussion Forum Generation PKU Diet Reply To: Diet

Avatar of Kayla

She eats it!! she has to drink 16oz a day of some orange crap!! I mean her nutritionist doesnt know but her eatting it doent effect her levels. She does have a mild case. She follows the diet most of the time. Bacon is the only meat that she has eaten. She never had any other kind. My mom said when she was tested she was only like 2g over 20 (which is PKU) but not high enough to be classic. She still has to go the boston childrens hospital every like 3mths and gets her blood taken every two weeks for her levels to be checked.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional