Community Discussion Forum Parent support what was your first reaction to pku Reply To: what was your first reaction to pku

Avatar of Caleb

When I first heard that my son had PKU I was terrified and could not understand. I felt like I had been cheated out of a normal child. HE is our only child and we love him dearly. Almost four years later I am thankful for having PKU be a part of our lives. It has changed the way I view others and people that are not “normal” if there is such a thing. I now try to educate everyone I meet about PKU. People are only scared of things they don’t know. PKU is my lifes platform and I am in a career that I am in contact with many people. I know our journey as parents has only begun but it is all we know so to my husband and me it is “normal”, as with any child life will throw you curve balls its all in how you catch it. Tessa

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Parent/caregiver of an infant with PKU
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