PKU.com Community Discussion Forum Parent support First time parent of baby with PKU Reply To: First time parent of baby with PKU

#5069
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millie11
Member

Hi, my name is jennifer and I am from England. Me and my husband had our first child in september. We had a little girl called millie. When we were told she had pku it was very upsetting. We went to the childrens hospital the day after feeling very depressed. we went home feeling so much better. we have our own dietition who calls us each week to let us know her levels. So far we havent had to amend the dose of formula which is good as i am still breastfeeding. We go back to the hospital in a couple of weeks to talk about introducing solid foods (non protein to begin with) I am quite worried about this as I dont know how my daughter will take to this. Also i am concerned about her levels changing. I would love to speak to people who are going through the same as we are, Jennifer Lonergan xx

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