Community Discussion Forum That’s PKU life! Looking For Pku Teen Friends Reply To: Looking For Pku Teen Friends

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Going to the dietition was like going to hell. There would always be tears and always be yelling… me. sometimes they wouldn’t even check emily because there was no need, she keeps doing the same perfect stuff so what’s to check? While I get lectured EVERY TIME i go there and I know JUST what I am going to get. I don’t like letting everybody down but guess what, I HATE doctors telling me what to do and saying “it’s not as hard as you are making it out to be” when guess what?…. they have no idea because THEY DONT HAVE TO DEAL WITH IT EVERY DAY OF THIER LIFE!!!!! errrr it errks me to no end!!!!! where do they have the right to tell me how to feel and what to think when they don’t even know what it is like to have to deal with pku on a daily basis? It is just a whole differnent world that they have no idea about. at least that is how I feel

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