Community Discussion Forum That’s PKU life! Looking For Pku Teen Friends Reply To: Looking For Pku Teen Friends

Avatar of Breanna

Yeah I know exactly what you mean! I don’t really have to deal with that as much since I got a new doctor and dietian like within the past year and they are pretty laid back. But from when I was like 4 up until I was maybe 13 I had this dumb doctor who always lectured me for hours on end (LITERTALLY!) And then he’d act all nice like I actually liked him and then like he totally blew everything out of proportion, one I remember I was like maybe 10 and my level was like 14mg/dl and then the next one came back as like 7mg/dl and instead of congratdulating me for bringing my levels down he yelled at me for not having it between2-6mg/dl! It made me sooooooooooooo mad!

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional