Community Discussion Forum Adults and PKU PKU Adults Reply To: PKU Adults

Avatar of kenneth

I agree, I have had PKU for 41 years, and when ever I see a doctor, and tell him or her that I have PKU and on PREKUNIL.They say well that’s a child hood disease, sorry to say but I kind of feel that we as PKU adults are given the short end of the stick. And that we are just making this up. nWell I have news for the people who kand of just sweep us under the carpet, We do have this and it is not just a child hood disease.

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