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My name is Debbie and I am 48 years old diagnosed with PKU in 1961 at 2 years and 4 months. About thirty years ago I went off diet as the medical professionals were doing that with people with PKU at that stage. The medical professionals are learning with us. Some of my great friends are medical professionals which I am so glad about but like anything a person has to shop around for good care.
I have come across ignorant people and really caring people as well! nSome people do treat me second rate citizen which bugs me a lot but they are stupid and ignorant!!!!

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Parent/caregiver of an infant with PKU
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