Community Discussion Forum New to New to Pku site Reply To: New to Pku site

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Dear Ken,
I am so glad I am not alone in this, although it certainly feels like it as there is no follow up or further contact with my doctor ( who is now deceased) or my dietitian. It is good that you were able to get into the Army, it goes to show that they aren’t always right. In Australia the doctors seem to concentrate on the children or parents of children, do you have adult support where you come from? I have lost contact with the other PKU kids as well, I don’t know what happened to them.

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