PKU.com Community Discussion Forum New to PKU.com New to Pku site Reply To: New to Pku site

#5110
Avatar of Dianne
dianne
Member

Dear Ken,
I am so glad I am not alone in this, although it certainly feels like it as there is no follow up or further contact with my doctor ( who is now deceased) or my dietitian. It is good that you were able to get into the Army, it goes to show that they aren’t always right. In Australia the doctors seem to concentrate on the children or parents of children, do you have adult support where you come from? I have lost contact with the other PKU kids as well, I don’t know what happened to them.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional