PKU.com Community Discussion Forum New to PKU.com Teens with PKU Reply To: Teens with PKU

#5132
Avatar of debbie
debbieco
Member

Good luck with your phe results! I went to my local doctor yesterday and I was again explaining PKU to him and ended up diagnosing myself with a virus! I gave him some notes about PKU so hopefully something will sink in!!
I find it really annoying that doctors don’t know anything about PKU as they should be trained in all areas of health!!

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional