Community Discussion Forum Generation PKU Anyone from England? Reply To: Anyone from England?

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Hi Jennifer welcome hope that your daughter is doing well. I have lived with PKU for 46 years and have seen so much improvement through the decades with the improvement of low protein food and formula. The low volumn formula are great compared to the aminogran, lophenalac, PKU Aid 2, calorine, kitavite liquid, tablets, furgon tablets and liquid, calcium.
I take Lophlex sachets and PKU Express Coolers the purple one.
I am here if you have any question and would like to talk!

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