Community Discussion Forum Adults and PKU pku types Reply To: pku types

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Angie, most of the reason why some people have a harder time living a normal life with PKU then others is how their diet was dealt with as a child. If you were taken off diet or on a very relaxed diet as a child the high levels of phenylalanine in your body can basically build up in your blood stream blocking the blood flow and oxygen flow to you brain. And that’s what causes things like lower IQ, learning problems, and can possibly leave children mentally retarded if PKU isn’t caught early enough. And then I was also told if you go off diet later in life you could experience things like tremors/shakes, headaches, vomitting, poor concentration, irritability, possibly seizures and alot of other things.

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