PKU.com Community Discussion Forum New to PKU.com My child with mild Hyperphe Reply To: My child with mild Hyperphe

#5245
Avatar of Charlene
McKenna
Member

Yes – Hyperphe is a mild case of PKU. Still considered PKU to my understanding. She has to continue to get her PHE levels checks every 2 months and then @ 6, 9 & 12 mths. After that I forgot how often.
Didn’t know if anyone knew of anyone with Hypherphe.
Thanks.

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