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Yes I did hear also that girls will have to be closely monitored if they want to become pregnant.
My Daughter right now has to get her Phe levels checks again at 9 mths. When she was first born it was weekely then went to 2mth, 4 & 6mths. I think after she is a 1 yr old, it has to be done yearly. So far so good though now..
In my case I think PKU is hereditary and genetic. My cousin has a baby with CPKU.

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