Yes I did hear also that girls will have to be closely monitored if they want to become pregnant. My Daughter right now has to get her Phe levels checks again at 9 mths. When she was first born it was weekely then went to 2mth, 4 & 6mths. I think after she is a 1 yr old, it has to be done yearly. So far so good though now.. In my case I think PKU is hereditary and genetic. My cousin has a baby with CPKU.