Community Discussion Forum Adults and PKU maternal pku Reply To: maternal pku

Avatar of amanda

hi i am a 26 yr old pku mother with 3 wonderful boys. i have had high levels my whole life, even when i was pregnant. i am thankful that my kids are healthy. my kids have no problems except gaining weight. i have a 3,2,and 11mo old. because of my boys weight and my high blood levels that state has taken that against me and took my boys recently. thank goodness its just temp. i have to get my levels down and stay on my diet in order to get my boys back. if you are pregnant with high levels and even though there isnt anything seriously wrong the state will use your pku against you. its a struggle to go from what iknow to something different but ill do anything for my boys and to have them in my arms again.[/SIZE][/FONT]

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional