PKU.com Community Discussion Forum Parent support Formula Reply To: Formula

#5366
Avatar of Breanna
BreaMarie91
Member

I really hope things improve! Just hang in there for now until you can find a solution. There are a few other groups online that you could check out if you want, they might be helpful aswell and some of the others might have some helpful ideas. Here are the links if you want to check them out:
http://www.myspecialdiet.com
http://www.pkuboard.info (everyone is very active here)
If you want I could write a message to your daughter either over this or email. Or I have a 8 year old sister with PKU and I could help her write a few messages to your daughter. I know she’s only five but I suppose you could read it to her and type a few sentences for her. I know sometimes it helps if there are others to talk to. But your the mother so it’s totally up to you if you want to give it a try! And I suppose you’d have to find out if that would be something your daughter would want first. It’s just a suggestion If you would like to try this you can email me at completeangel@ameritech.net or you can just leave a message here.
Anyway I hope this all helped alittle and I hope you can get a hold of some more formulas for her to try. nBreanna

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