Community Discussion Forum That’s PKU life! Suprising news Reply To: Suprising news

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I’m sure you know that you have the right to have different staff members at any time and for any or no reason. Even the best dietician in the world may not be right for some person. The forms they give you about pt rights aren’t just to make sure that the hospital doesn’t get sued (although is part of it) but to ensure that you get good care. It sounds that since the change, you’re doing better, and your ‘primary caregiver’ is getting re-involved in the clinic visits. nFor anyone out there, make your voice heard. That’s how we get rid of bad eggs and get good matches between staff and consumers. nAnyway, off my professional soapbox. Congrats on the great blood levels. nRandy

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