PKU.com Community Discussion Forum Adults and PKU maternal pku Reply To: maternal pku

#5483
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greyrose97
Member

I have PKU and i now have 2 healthy children. one is 3 the other is 1. i hadn’t been on diet since i was 8 then i got pregnant registered myself into a high risk pre-natal clinic where they monitored me closely i also found myself a dietition which specializes in PKU. i went onto diet when i was about 5-6 weeks pregnant and yes by the end of my pregnancies my dietition told me that i needed to eat hamburgers and hotdogs to get some weight onto the babies……needless to say that i had my first baby early, by four weeks, my fluids were low. she was only 4 1/2 lbs at birth, and 18 inches long…..now she is getting ready to turn 4 she is 3 1/2 feet tall and weighs 35-38 lbs…after having her i fell off diet again. and did the same again. 6 weeks pregnant got back on diet again. my son was almost a week late. he was 71/2 lbs and 18-19 inches long……my drink of choice was maximum xp(orange flavored) and instead of counting phe’s i counted protien in-take and it worked…..my children do not have pku they just carry the gene, they are completely healthy…sent blood samples in every week.

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