Community Discussion Forum Generation PKU Hey I’m new Reply To: Hey I’m new

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Hi Sarah-
I’m Breanna, 15 and have PKU too! So does one of my little sisters. My parents used to always get made at me when I ate too much for the day or my blood levels came back not good, so that’s one reason why I’ve been working really hard to get my levels where they need to be. My last level came back as a 2.4mg/dl! I think that’s 144 if you count in the big numbers.
I know it’s hard but try to stick to only how many exchanges your allowed. I know it’s over said but, You’ll feel alot better just in general when your levels are good. Just curious how many exchanges your allowed? Me and my sister are allowed 20exchanges (but we count in Phe so we get 300phes…but it’s the same thing). nBreanna

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