Community Discussion Forum What’s the Phe? PKU AND ALTIMERS Reply To: PKU AND ALTIMERS

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The fact is…no one really knows for sure the long-term effects of high phe levels in those treated early in life or on and off. PKU is still a fairly recently treatable condition, and the oldest PKUers to be treated as children are now only entering their 40s or so. Which means…no one really knows what’ll happen when we’re 60. This is one of the main reasons I’ve gone back on-diet despite doing well for nearly 30 years off…I’m one of the older generation, and I’m not too keen on the docs learning by what goes wrong with me.

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