Community Discussion Forum New to My child with mild Hyperphe Reply To: My child with mild Hyperphe

Avatar of Amy

My daughter was born March 25, 2005 and was diagnosed as hyperphe a few days after birth. She just turned two and is doing great. We live in California and they recommend we test her blood once every month. Her levels have been between 2.2-5.7, which is fine. It’s tough to find out any info on hyperphe (also called “mild” or “atypical” pku) out there. We really haven’t let it affect us, and we’re trying for baby number two now, pku or not. Hope all is well, there are others out there…Hope you post again, you’re the first I’ve come across online w/a hyperphe kid.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional